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Palliatively Speaking Episode 2 - Compassion: The Key to High Quality Care
Guest: Arif Kamal
Guest’s Guest: Christopher Jones
Dr. Arif Kamal, an oncologist, palliative care physician and Chief Patient Officer at the American Cancer Society (ACS). Kamal reflects on his work in oncology and palliative care, emphasizing compassion in cancer care, the role AI assistive intelligence will play in enhancing the role of humans in healthcare, and the importance of a supportive community to help you weather career setbacks.
Dr. Kamal discusses how palliative care principles, like understanding a patient’s needs and values, can be integrated into routine oncology care and how this could become easier as the field of medicine incorporates the assistive intelligence aspects of AI that can assist with generating differential diagnoses and treatment considerations. He advocates for the role of compassionate care such as considering first, who is our patient before determining what the treatment approach should be where healthcare providers prioritize understanding who the patient is before focusing on medical conditions or treatments. We discuss the future impact of AI in enhancing decision-making in oncology and he calls for a shift in how care providers are incentivized, promoting compassion as an essential component of high-quality healthcare.
Dr. Kamal discusses the role of mentors in his life, career setbacks, and personal experiences that shaped his path, highlighting resilience and the importance of finding supportive communities. We welcome his guest, Dr. Christopher Jones, the editor-in-chief of the Journal of Palliative Medicine and the clinical vice chair for Duke Palliative Care. They discuss operationalizing palliative care interventions, the human side of medicine, the challenges of burnout and the importance of creating a balance between professional responsibilities and personal well-being.
Guest: Arif Kamal Guest’s Guest: Christopher Jones Dr. Arif Kamal, an oncologist, palliative care physician and Chief Patient Officer at the American Cancer Society (ACS). Kamal reflects on his work in oncology and palliative care, emphasizing compassion in cancer care, the role AI assistive intelligence will play in enhancing the role of humans in healthcare, and the importance of a supportive community to help you weather career setbacks. Dr. Kamal discusses how palliative care principles, like understanding a patient’s needs and values, can be integrated into routine oncology care and how this could become easier as the field of medicine incorporates the assistive intelligence aspects of AI that can assist with generating differential diagnoses and treatment considerations. He advocates for the role of compassionate care such as considering first, who is our patient before determining what the treatment approach should be where healthcare providers prioritize understanding who the patient is before focusing on medical conditions or treatments.
We discuss the future impact of AI in enhancing decision-making in oncology and he calls for a shift in how care providers are incentivized, promoting compassion as an essential component of high-quality healthcare. Dr. Kamal discusses the role of mentors in his life, career setbacks, and personal experiences that shaped his path, highlighting resilience and the importance of finding supportive communities. We welcome his guest, Dr. Christopher Jones, the editor-in-chief of the Journal of Palliative Medicine and the clinical vice chair for Duke Palliative Care. They discuss operationalizing palliative care interventions, the human side of medicine, the challenges of burnout and the importance of creating a balance between professional responsibilities and personal well-being.
Palliatively Speaking Episode1 - Navigating Uncertainty in Pediatric Palliative Care
Episode title: Navigating Uncertainty in Pediatric Palliative Care
Dr. Debra Lotstein, a pediatric palliative care physician and leader at UCLA reflects on her journey into pediatric palliative care, sharing how an early experience as a resident shaped her understanding of end-of-life care. She shares a defining moment in her career when she realized that focusing solely on advanced, life saving medical interventions can overlooks what truly matters to a patient or family. We discuss the emotional and cognitive challenges of working with seriously ill and dying children. She tells how she “reads the room”, builds trust, and helps families navigate uncertainty. She reminds us that pediatric palliative care is a team sport where members bring unique skills to the bedside but also support each other through tough cases. Dr. Lotstein’s deep sense of purpose and commitment to her patients and families is evident and led her to advocate at the policy level locally and nationally to improving palliative care systems of care for children. Her reflections offer insight into the emotional depth, ethical complexities, and profound rewards of working in pediatric palliative care.
Dr. Debra Lotstein is joined by Patty Everett, the mother of Ryan, a young man with severe disabilities. Their conversation delves into the emotional and logistical challenges of caring for a child with complex medical needs and how palliative care provides critical support. Patty recounts how Dr. Lotstein guided her through many of the most difficult decisions of her life regarding carin for Ryan, breaking down the process step by step in a way that felt manageable and compassionate. We discuss the role of concurrent hospice care, which allowed Ryan to receive both standard medical treatment and palliative support simultaneously. Beyond the personal aspects of their work together, the episode highlights their shared commitment to policy advocacy, including testifying at the California State House to ensure continued palliative care access for young adults transitioning out of pediatric care. We can see how relationships forged in difficult circumstances can lead to connection and action that may help shape the future of palliative care medicine.
Guest: Debra Lotstein
Guest’s Guest: Patty Everett
Dr. Debra Lotstein, a pediatric palliative care physician and leader at UCLA reflects on her journey into pediatric palliative care, sharing how an early experience as a resident shaped her understanding of end-of-life care. She shares a defining moment in her career when she realized that focusing solely on advanced, life saving medical interventions can overlooks what truly matters to a patient or family. We discuss the emotional and cognitive challenges of working with seriously ill and dying children. She tells how she “reads the room”, builds trust, and helps families navigate uncertainty. She reminds us that pediatric palliative care is a team sport where members bring unique skills to the bedside but also support each other through tough cases. Dr. Lotstein’s deep sense of purpose and commitment to her patients and families is evident and led her to advocate at the policy level locally and nationally to improving palliative care systems of care for children. Her reflections offer insight into the emotional depth, ethical complexities, and profound rewards of working in pediatric palliative care.
Dr. Debra Lotstein is joined by Patty Everett, the mother of Ryan, a young man with severe disabilities. Their conversation delves into the emotional and logistical challenges of caring for a child with complex medical needs and how palliative care provides critical support. Patty recounts how Dr. Lotstein guided her through many of the most difficult decisions of her life regarding carin for Ryan, breaking down the process step by step in a way that felt manageable and compassionate. We discuss the role of concurrent hospice care, which allowed Ryan to receive both standard medical treatment and palliative support simultaneously. Beyond the personal aspects of their work together, the episode highlights their shared commitment to policy advocacy, including testifying at the California State House to ensure continued palliative care access for young adults transitioning out of pediatric care. We can see how relationships forged in difficult circumstances can lead to connection and action that may help shape the future of palliative care medicine.
Palliatively Speaking Trailer
In this podcast, host Toby Campbell dives into the inspiring journeys of clinicians from all corners of palliative care. You’ll hear from palliative care physicians, nurses, social workers, scientists, and chaplains who are making a profound impact through their groundbreaking research, advocacy work, innovative tools, and, of course, by being there for patients and families in their most vulnerable moments.
We’ll explore what drives them, how they got started, the challenges they've faced, and those moments of clarity that changed everything. Stick around; you’re about to be inspired and transformed.
About the show:
Dr. Toby Campbell talks to the brightest minds in the field of palliative care. Together, they examine the experts’ knowledge about culture, medicine, communication and what it means to truly live, and die, well.
Each episode, his guest brings a guest to the show. A guest's guest. Dr. Campbell lets them introduce each other so that we can see these special people through the eyes of someone who knows them best.
Listen to Palliatively Speaking.
Credits:
Podcast production: SPEAK.STUDIO
Co-production, writing, editing, Instagram, basically all the things big and little: Bonyan Qudah, PhD
Graphic design and website creation: Jinger Schroeder, Inc.
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